6.5.1. A literature review on cancer screening programs for people with IDs in Europe. The review will examine the effectiveness of existing cancer screening programs, access barriers and strategies that have been implemented to
address these barriers, if any.
6.5.2. European stakeholders will be interviewed focusing on the experiences with cancer screening of people with IDs and strategies that have been effective in improving their cancer screening rates.
6.5.3. Analysis of available Norwegian Cancer Registry data on cancer screening in people with IDs. Norwegian registry data have several advantages over most other data from European countries and the analyses provided may serve as a template for collecting epidemiologic data in other countries as well.
6.5.4. A study on feasibility and acceptance of HPV self-sampling of selfsampling among long-term screening non-attenders with a mild to moderate mental disability will be conducted. It will consist of a literature review, a survey
among health care professionals in (residential) nursing care, caretakers and women with a disability, and a feasibility study. Results will be synthesised to identify best practices for improving cancer screening for people with IDs in Europe and to guide future data collection and analysis.
This task will be led by DKG, Germany. Major contributors will be Norway (6.5.3) and Belgium (6.5.4).